Autoimmune patient survey

1. Which best describes you? I live with an autoimmune condition I care for someone who does Both

2. Which condition(s) are you managing?

Select all that apply.

3. How long since you were diagnosed? Less than 6 months 6 months to 2 years 2 to 5 years 5+ years Still seeking a diagnosis

4. What's hardest about managing your condition?

Type 1, 2 and 3 next to your top three (1 = hardest).

Understanding my lab results Keeping track of my symptoms Knowing what to ask my doctor Managing my medications Feeling unheard by my care team Making sense of conflicting info online Coordinating between multiple doctors The mental & emotional load

5. When you get lab results, how well do you understand what they mean for you?

Not at all 1 2 3 4 5 Completely

6. How prepared do you feel walking into a specialist appointment?

Not at all 1 2 3 4 5 Completely

7. Where do you go now to make sense of your health between visits?

Select all that apply.

Google Facebook groups or Reddit My doctor's portal A patient advocacy organization Friends or family Nowhere, really

8. If a tool could do one thing for you — what would it be, and what would it do?

9. How often do you think you'd use something like that? Daily A few times a week Weekly A few times a month Only around appointments or lab results Rarely

10. How interested would you be in a private companion that keeps your health in one place and explains it in plain language?

Not at all 1 2 3 4 5 Very

11. Do you use AI tools like ChatGPT, Claude, or Gemini for your health today? Yes, often Sometimes Not yet, but I'd like to I didn't know I could No

12. How would you feel if a pharmaceutical company ever wanted to approach you about a clinical trial, or to understand how you feel after trying one of your medications? Appreciative I'd be OK with it Skeptical I would disapprove I'd reject the idea I value my privacy too much

Want to be one of the first to try Ethia, free?

Yes — count me in as an early tester. Create your free account for a $200 drawing, and connect your MyChart for a $500 drawing too.

Your email *

We'll send a link to confirm your entry. That's it — never sold.

This survey reached you through the Crohn's & Colitis Foundation, Philadelphia/Delaware Valley Chapter. I agree that Ethia shares my entry number and email with the Foundation. My survey answers stay with Ethia.

You're rarely asked what you actually need.